Saturday, 12 December 2015

Saturday Morning

And now for something completely different...



Saturday morning before kids:




10.30am

SB: *yawn* I'm tired, can we skip that party tonight and watch a DVD?

MrSB: ok

SB: Cool, let's have a lie in, then get Dim Sum and play Mario Karts all day.

MrSB: ok




Saturday morning after kids:




6.30am

SB: *Yawn* I'm tired, but shall we try to have a "date night" and stream a film tonight?

MrSB: ok

SB: Cool, but I'll be too knackered to concentrate after 10.30 so we'd better get the kids to bed on time.

Which means they'll have to have dinner at 5, so I'll have to start cooking at 4 and we'd better take them to the park before that to wear them out which means MissM needs to go down for her nap by 1 or there won't be time.

So we'd better have lunch at 12 and we'd better be home by 11.30 to make it so we'll have to come straight home after swimming lessons which means going to the shops before the lessons and getting all the swimming stuff ready before that.

Oh and we really need to do the laundry.

So basically we can watch a film tonight if we get up half an hour ago.

Still, it's nice to be at home for a relaxed weekend sometimes.

MrSB: ok


I may be over thinking things. Tell me I'm not the only one?

SBx

Monday, 30 November 2015

A Mum's Guide To Dodgy Science: From Petri Dishes To People


Time for the second instalment of my "how to spot a dodgy science/health story" series. This one is more well known than Publication By Press Release and is one of the first questions to ask of any article claiming a new discovery kills, cures or otherwise alters your health:

Was this study done on humans like me?

All too often the answer to that question is no. The most notorious examples are probably the "Miracle Drug/Food Cures Cancer" headlines, where it turns out that the cancer being destroyed isn't in a person, it's just a bunch of cells in a dish. Certainly killing the contents of a petri dish may be an important first step in discovering a new treatment but the vast majority of stuff that can do that never makes it much further. Lots of things can kill cancer cells in a dish, domestic bleach works well, but I wouldn't recommend it as a medication.


Cartoon from the wonderful xkcd

But even if your new wonder drug does turn out to be safe, that doesn't mean it'll work in people. Firstly there is the issue of quantity. Cells can be given huge doses but humans might need to consume impossible amounts for it to do anything. Plus human beings are wonderfully, confusingly, unpredictably complex. Far more so than a single type of cell in a carefully controlled plastic environment. There are an almost infinite number of reasons why something that works "ex-vivo" (in the dish) will be a total flop in a full blown person.

It's not just cells in dishes that are the problem though. Moving on to whole animals isn't a guarantee things will work in humans. Fruit flies, Zebra fish and nematode worms are all popular "model organisms" but quite clearly very different to us. Even calling in our mammal cousins can't tell us everything.




I was reminded of this today when I read this particularly groan worthy story which claims that being born by Cesarean section could affect brain development. It draws this conclusion from a study done in mice and says that those mice born by C section showed increased brain cell death after birth and this may be linked to these mice having a different microbiome to those who got a good dose of mum's bugs on the way out.


(I'm not quite sure which is the most glaring error in this story, although the fact that the abstract it's based on says exactly the opposite, that cell death decreased not increased in the CS group, is probably a good place to start. I was seriously tempted to just write a whole blog pulling this story apart but I'm going to try to restrain myself and get back to the point....)

Fairly obviously mice aren't people. Laboratory mice definitely aren't the equivalent of a diverse human population. Neither the article or the abstract tell us what type of mice were used in this study but they were most likely one of many specifically bred laboratory strains with carefully selected and controlled characteristics. So something that is true in one strain of mice might not even be true of all of them.

This becomes even more important when the story starts speculating about the involvement of the microbiome (the bacteria that live in and on an individual). Different strains of mice have different microbiomes. Even identical strains raised in different labs will vary thanks to diet, environment and how strictly they are isolated from other germs etc. The microbiome is a fascinating field for study and will probably open up a whole new world of information about our bodies, but at the moment it is very much in it's infancy. We can't even accurately identify all the bacteria that are there, never mind how they interact. So it's a whopping great Olympic triple jump of a leap to suggest that something seen in baby lab mice, which may or may not be linked to their microbiomes, can tell us anything about the affect of differing microbiomes in humans.





Oh and it gets worse. Even humans aren't always a good model for other humans. Especially if the humans that need medical treatment are female. Historically, far fewer women have been included in clinical trials. There are lots of diseases that affect men and women differently so treatments tested mostly on males don't always work as well or in the same way in females. Our bodies also change more and more often. Hormone levels change throughout life and even over the course of a month. If you're pregnant, forget it! Since the horrors of Thalidamide almost nothing gets tested on pregnant women, (although there are some calls to change this).

Then there are the confounding variables of culture, diet, geography etc. etc. These could be subtle, biological interactions or something more obvious: Say a study claims that eating Kale makes you healthier because people who eat loads of it have less heart disease - does that mean there is something miraculous in the green stuff or could it just be that, in the experiment, the people who ate lots of Kale all lived in communities where everyone had a great diet and was very physically active?


Salad, the bringer of joy and laughter (in stock photo land)


None of this is to say that we should throw up our hands and ignore all scientific advice. But if you're going to make an alteration to your life based on it, then it's worth checking how likely it is to apply to you as an individual. Cells in a petri dish or mice in a lab are interesting, and certainly useful in early research and safety testing, but they aren't as complex as you. other humans are more comparable but if they are a different sex and/or living a totally different lifestyle you might want to think about what else could be going on.

Finally (I'm beginning to think I'll be ending every one of these posts like this), just don't put too much faith in health advice from newspapers, facebook shares and, of course, random people's blogs.

SBx

Ok I couldn't leave it alone, here's some other stuff I got annoyed with in that story about C section mice:
1- It's just a meeting abstract, nothing has been peer reviewed yet (see post on Publication By Press Release!) 
2- Even if there is an increase / decrease in brain cell death - how do we know the C section mice are worse off? This doesn't seem to have been tested, it's assumed natural is better but it's theoretically possible that the opposite is true.
3-It's one single (unpublished) study, many if not most individual papers turn out to be flawed so it should be taken with a big 'ole pile of salt until it's repeated by others.
4- The whole microbiome bit just seems to have been chucked in because it's a bit of a buzzword at the moment, especially with anything related to C sections. I'm amazed they didn't get epigenetics in there too.
5- The article speculates that brain differences may also be caused by C section babies not getting the "rush of hormones" during normal labour. Which may be true of lab mice having planned C sections but a large number of human c sections happen well after labour began *coughs* sometimes 34 hours after *coughs*
6- Wonderfully, for an article so full of extrapolation, speculation and a few baffling errors, it ends with the phrase: "having the full facts available before a choice is made is important."

Well yes it is.

*face palm*








Wednesday, 25 November 2015

Don't Fear Sunday's Child - A Look At Today's Headlines On Weekend Births

If  I was pregnant at the moment I suspect I'd find today's headlines pretty scary. They report that giving birth at the weekend, something most women can not control or predict, puts babies lives at risk.

It would be great if we could dismiss this as yet another case of media hype, a rouge press release or even (as has been suggested) a conspiracy theory aiming to turn the public against junior doctors.  But having read the stories, the press release and the paper they are all based on, I think it's all a bit more complicated than that.

The first thing I want to say though, to any readers who are pregnant and scared  by this news is please, don't be.

The headline story that there is a binary difference between weekend and weekdays simply isn't true. Take a look at the data below, taken from the BMJ paper this is all based on. The death rate is highest for babies born on a Thursday. In fact the most notable trend isn't a peak at the weekend but a drop on Mondays and Tuesdays. This trough drags down the average across all weekdays, making the weekend average seem much higher  by comparison.  This data doesn't tell us that lives would be saved if weekends were more like weekdays. It shows we'd be better off if every day was more like Tuesday (this may be the only time in all of human history when that sentence has been true!)


Plot taken (axis adapted for clarity) from the BMJ paper 



So should we instead  be terrified of giving birth on a Thursday?  The paper doesn't really address this issue. It merely speculates  (unconvincingly in my opinion) that babies born on a Thursday may be more likely to die a few days later because of the care they receive over the weekend.

This study also doesn't prove that weekends are more dangerous because the consultants are all off playing golf or something. It found no difference in death rates between units that met the recommended consultant levels and those that didn't. In fact of all the outcomes looked at, including injuries, infections and hospital re-admissions, the only one where weekend consultant numbers were important was the number of perineal tears. Yet even this isn't necessarily an indicator of poorer care when consultants aren't around. It is quite widely believed that obstetricians are more risk averse than midwives and more likely to recommend emergency caesareans. The decreased number of tears when there are more consultants may be due to an increase in possibly avoidable C sections. I expect many mums will have an opinion on which is the lesser of those particular evils!

I am, by the way, just speculating on the fewer tears means more C-sections thing. But that brings me to the fundamental flaws in this paper and how it's being reported to the public. The news stories and (unusually) the paper itself all seem determined that there is indeed a "weekend effect". They gloss over or ignore the data showing that this effect starts on Wednesday, and, having shown that consultant cover isn't an issue, offer only speculation on potential causes. Much of these seems to have been thought up to make the data fit the hypothesis. For example, while it may be the case that outcomes for babies born on Thursday are influenced by their care the following weekend, there is no real evidence for that. The data doesn't tell us how long babies were in hospital after the birth. Similarly it doesn't tell us how long the mother was in labour (and in the hospital) prior to birth, a period where good care is crucial. A large proportion of the women giving birth on a Monday and even Tuesday will have been receiving weekend care during labour, yet these are actually the days with the lowest death rates. Why? We don't know, but perhaps the question of why babies born at the weekend fare worst should be re-framed so we're asking what we can learn from the Monday and Tuesday births.




This study is fascinating and will certainly be a valuable contribution to the academic literature on the subject, but it generates more questions than it answers.

For example, the birth rate is 21% lower at weekends. Even if elective c sections (which are very low risk and almost always done on weekdays) are removed, it is still 11% lower. Why? Could a reduction in the number of Inductions (IOL) at the weekend be involved? There is increasing evidence that IOL for overdue babies improves a number of outcomes, but this isn't covered int he paper so we don't know.

If consultant cover makes no difference what about the number of midwives, junior doctors, pediatricians etc.? What about their work patterns and moral?

What about dozens of other factors that we just haven't thought of? The simple answer is we don't know.

What we do know, if we actually look at the data not the headlines, is that there is no reason for women to be afraid of going into labour on the weekend. I've heard several health care professionals today express concern that women who start to get contractions, who's waters break or who feel a reduction in their baby's movements could delay going to hospital to avoid the weekend effect and in so doing risk something worse. The prospect of giving birth can be scary enough as it is, women need real evidence not hype. I find myself saying this over and over again, we are grown up adult human beings - why are we so rarely treated like it when there are column inches up for grabs (and perhaps in this case academic impact factors)?

Clearly more research is needed on the questions raised by this paper, it could be the starting point for something really useful, maybe lifesaving. But right now, it and the media response to it, only risk causing yet more fear and confusion.




If you are pregnant and reading this, just take this one thing away: The NHS is flawed and under funded, sometimes it makes mistakes, sometimes it just doesn't do things as well as it should, but if things get difficult in childbirth it has your back. The vast majority of women will take home wonderful, healthy babies, whatever day of the week they decide to turn up on. I, and my babies, wouldn't be here without it.

SBx

In case you missed the other links - the original paper including the full version of the diagram above can be found HERE

EDITED TO ADD (26.11.15) I've just seen this response  from the RCOG it raises a few additional and important points that I didn't include in this post and is well worth a read (I'm neither an obstetrician or a statistician and didn't want to include anything I wasn't sure I had right!) An important one is that for 86% of still births the baby dies before birth, often several days before so the day they are actually born doesn't tell us what happened or when.

Friday, 6 November 2015

A Mum's Guide To Dodgy Science: Publication By Press Release


Sometimes, it sucks being a grown up. I've actually had enough time to write some blog posts recently but other events have left me with a lack of motivation for anything other than eating cake and reading Tudor crime novels under a blanket (it's a fairly niche slump). Anyway, in an attempt to drag myself out of it, before any more Lutheran priests meet a grisly end, I've decided to revisit some old blog posts as a way of sharing tips on how to spot dodgy science and health stories. The reproductive lives of the Tudor queens may have been subject to much debate and gossip, but hey, we modern Mums have to deal with medical advice from the Daily Mail!

First up in what will hopefully be a series of posts - Publication By Press Release:


Note on stock photos: anything featuring mobile phones gets very dated, very quickly.


What is supposed to happen when a scientist completes a study or set of experiments it that she/he writes it all up and sends it to a scientific journal who get other experts in the field to check it. They then usually ask for a few corrections and maybe some extra data and decide if the work is good enough to be published. It's a process known as peer review and there are any number of flaws in it but it is the best available system for scientific publishing and the one all scientists are supposed to endure  engage with.

Increasingly though I see cases where this isn't happening. A good example came almost exactly a year ago when a whole raft of news outlets got all excited over initial results from a study hoping to increase breast feeding rates by giving breast feeding Mums shopping vouchers. You can read my post from the time here but essentially this wasn't a story about a published paper, it was based on the author planing to give a presentation at a meeting. As I said at the time, you could in theory get up and say any old nonsense you wanted at a scientific meeting so simply planning to speak at one tells us nothing about the quality of what will be said. Of course if you do talk rot you'll face some pretty stiff questioning from the audience afterwards and I hope that happened in this case, I certainly had a lot of queries about the quality of the study! Interestingly, a year on, I still can't find any published results. To be fair the peer review process can be achingly slow but so far all that seems to have come out of this much touted study is two papers about how the study team sought opinions from a small number of women and health care professionals. Not very impressive, and really not worthy of repeat slots on breakfast news!


Breast feeding is totally absolutely always just like this *snort*


Instead of waiting until the study had been assessed and the results checked, someone, somewhere (I could probably take a guess at who), decided to get some media attention and put out a press release and because the media just luurve stories about health/ breast feeding/ women's bodies/ judging poor people that press release was gratefully picked up.

So who's to blame for this kind of non-story? It's tempting (presumably unless you are one) to just blame the journalists, looking for sensational stories and to hell with the truth. Sometimes that's fair, In an ideal world a journalist receiving a press release about some scientific research would check the published data and seek out alternative expert opinions. But we're not talking about getting this done in time for tonight's print run or the 10pm news bulletin anymore. If it's news, it needs to be up online and on social media in hours or perhaps minutes and it needs to compete in an almost infinite fight for attention. So perhaps it's not surprising that journalists often depend on a press release from a respectable institution being accurate. In the immortal words of Whitney Huston: It's not right, but it's ok.


Sing it Whitney



Actually no it's not ok, but I had that song in my head for some reason, anywaaay,

Sometimes the blame for this sort of thing needs to be shared out. If the journalists are relying on university press releases to be accurate, then university press officers need to make sure they are. But again there is a conflict. Not putting out a press release because something isn't published yet isn't going to get you any publicity, so there is an understandable temptation to take any opportunity to get your institution talked about. The scientists themselves should be checking that press releases are an accurate reflection of their work but this also doesn't always happen. Scientists are ordinary people they're busy, they may be under pressure to publish or at least get some publicity and some ordinary people just really like their own opinions and/or their 15 minutes or fame.

Which brings me on to another old blog post. In this case there was a published paper, but it bears little resemblance to the the press coverage it generated.  According to the Telegraph and (oh yes) The Daily Mail, we should all co-sleep/bedshare with our children until they are three. Not because they like it or it's just the only way for anyone to get some sleep sometimes, but because not doing so results in lasting damage to children's hearts and harms brain development causing behavioral problems later in life. Pretty damn scary news if, like me, your kid was actually pretty happy in her own cot most of the time. But the paper says absolutely nothing about these dreadful long term problems, it looked at the heart rate of a few newborns being held by their mother and compared that to their heart rate when they were in a crib. Presumably one of the authors got rather carried away and extrapolated wildly from that to the three years or brain damage headlines. The media were happy to go along with it because hey look! Another opportunity to tell Mum's we're doing it wrong!



Actually if Mum's are so dreadful at this baby sleep thing perhaps Dad's should be in charge of it, all of it *evil cackle*


All this bugs me. There is loads of good, interesting, important science going on out there. A small proportion of which offers real, useful advice to improve people's health and well being. But when small, unchecked, unproven studies start fighting for column inches or the stories that reach the public are wild fantasies based only vaguely on the evidence, then how can anyone know what to believe and act on? The valuable stuff gets crowded out or people simply feel drowned in information and give up on all of it.

Clearly most parents have one or two other things to do and don't have time to conduct their own personal scientific literature review for every single bit of health advice so here are a few things to look out for in a news story which may suggest you're looking at Publication By Press Release rather than a properly checked over bit of research.




The Spotters Guide To:

Publication By Press Release

If a health news story meets any of these criteria, it may be a bit dodgy:
  • There is no mention of or reference to a scientific paper
  • The story says the information will be presented at a meeting
  • The story says the information came from an interview or other media article
  • The only quotes and opinions come from people who worked on the research


Basically just don't ever put too much faith in one off bits of information and advice in the media and online.

Like for example information and advice on random blogs.


Oh.


Next up - more exaggerations, From Petri Dishes To People.



SBx

Friday, 16 October 2015

The Loneliness Of the Smart Phone User?


I've seen links to images by American photographer Eric Pickersgill a few times now on social media. He took photos of people looking at their smartphones but removed the phones. It's supposed to highlight now strange and lonely smart phones can make us, how we can be in the presence of friends, family or lovers yet be isolated from them by mutual screen addiction. Take a look at the pictures and see what you think.

Then, imagine that instead of replacing the phones in these people's hands, we put books there instead. Would we consider a couple snuggling on the sofa together reading to be sad and distant from each other? Would we shudder at the sight of three young brothers all reading books? The book readers are no more likely to be interacting with each other than the smart phone users but few people would criticise them for their page hours. Books are old and good, phones are new and bad. But I'd bet people once said the printing press would drive families apart.

I find the idea that modern technology makes us less social very odd. Of course there needs to be limits, we try to eat meals as a family around the table and phones are banned. My husband is no doubt raising a sardonic eyebrow at this post as I often tell him off for staring at the phone when I'm trying to talk to him. But overall, smart phones, tablets etc. help me to communicate more, not less.




Here's a few examples from yesterday, a pretty typical day.

I had a few minutes for myself before the kids got up so I flicked through twitter, catching up with news and opinions from American. Not the global events that would be in the UK press too but the smaller things that were interesting people while I was asleep.

After breakfast the girls were dancing around the kitchen so I took a few pictures on my phone and made a quick collage of them on Instagram. They are mostly blurred, but they meant that my Mum, who lives five hours away, would get a peek at what her grandchildren were doing that very day. 

At work I was watching a very dull experiment when I got a lovely message on WhatsApp from a colleague who works different days to me. She sent a picture of a meal she'd cooked, thanking me for the recipe and arranging to pop round to my house at the weekend and return some baby things I'd lent her. 

At lunchtime I only had time for a quick break on my own, so I flicked through Facebook and saw pictures of a friend's children playing in her house, she lives in Australia now and I've not met them all. 

I ran home from work with my phone stuffed in my bag but was still able to take a call from my husband, thanks to my bluetooth headphones. Afterwards I used my smart watch to send him a link to my phone's GPS. It meant he knew exactly when I'd be home and that it would be worth keeping the kids up so I could read them a bedtime story.

At the end of the day I curled up on the sofa with my husband and we watched a film, streamed to our TV and controlled by an app on his phone.





None of this is big interesting stuff, it's just the mundane everyday business of life. If everyone you know and care about lives in the same village as you then smart phone communications probably don't matter. But like so many people my loved ones are spread around the world, keeping in touch with them was the main reason I started blogging. Without my smart phone and laptop I'd still probably hear about the big things, the marriages, deaths and babies but I wouldn't get to share the everyday details of life. The silly poster someone spotted or the friend who's had a bad day at work. I wouldn't get to read interesting articles from writers all over the world in publications I may never have heard of. My parents wouldn't be able to see their grandchild via skype, jumping about in her fancy dress costume. I wouldn't have met many wonderful, fascinating and diverse people through online groups and discussions.

Technology can come between people, but it can also bring us together, shrinking the barriers of geography and time zones. It can be lonely, being at home with only very young children for company, waiting for yet another delayed commuter train or living many miles from all your family. But with my smartphone in my hand I always have friends a few taps away. My village is global but I carry it in my pocket.


Tuesday, 13 October 2015

Acupuncture For All - On the NHS?

I was really disappointed to read this article today in the Guardian, The general gist is that some doctors think acupuncture works and should be available on the NHS with all doctors learning at least a little about it in training and midwives being trained to administer it to ease labour pain. According to the article the NHS is only denying us this treatment because of the "entrenched scepticism...of the medical establishment" and GPs "making a judgement on something they do not know anything about".

The first thing that really bugged me about this piece is how very one sided it is. Those promoting acupuncture are painted as brave and caring individuals fighting against a faceless dogma. But non of those sceptical establishment figures or judgy GPs actually get to articulate why they don't refer patients for acupuncture. The piece also throws in various claims to support the practice but they don't stand up to a great deal of scrutiny and the writer doesn't question any of them. Edzard Ernst has gone over a number of these on his blog so head over there to see what I mean.

But what really bugged me was the statement that a major London hospital was offering acupuncture to all women who wanted pain relief in labour. I actually find this idea a bit insulting.

At this point it might surprise you to know that I had acupuncture just before MissE was born. I was overdue, hot, uncomfortable and desperate to avoid an induction. The acupuncture session was lovely. I lay in a dim room for an hour, soothing music playing and a friendly woman listening to how I felt, offering to help with my concerns and asking if there was anything else she could do for me. I came out feeling calmer and less achy than I had done in weeks, but I didn't go into labour for another four days and I suspect a good massage would have had much the same effect.

Which is one of the things that concerns me about offering acupuncture in labour, The evidence for it is, at best, limited. But I have no doubt that a midwife taking time to listen to a women, understand her fears, acknowledge her pain and offer ways to ease it would make labour easier, less stressful and probably less painful. That's the placebo effect, it's very powerful and you don't need needles to achieve it, you need time. If a women accepts the offer of acupuncture and gets dedicated one to one care, even just for a little while, then that's great for her, but does it also draw care away from women who don't want needles put in them? Perhaps this hospital has plenty of midwives to go round so they can afford to give every woman great care, needles or no? If so I'd rather they were promoting whatever it is they've done to achieve that because it certainly wasn't the case for me at another major London hospital not far away!

I hope they also have lots of anesthetists available. I hadn't wanted an epidural when I had MissE, but 24 hours into labour with no end in sight I asked for one. I then had a miserably long wait as all the anesthetists were busy, then the drugs had run out. Frankly, if they'd offered me acupuncture instead at that point I'd have thought they were taking the piss! Difficulties in getting an epidural are a pretty common story, I've heard plenty of tales of women told they couldn't have an epidural because they weren't far enough along/ were too far along/ should just try to cope without. Perhaps those things never happen at this hospital? I certainly hope women aren't being encouraged or perhaps forced to rely on an unproven technique instead of effective drugs.

Which all in all leaves me wondering if women are being fobbed off here? Sending a midwife on a one day course is a lot cheaper than training and employing more anesthetists. Taking time to listen to and care for those women who want acupuncture is easier than applying the same standard of care to all. I also get that familiar, uneasy feeling that women who choose the serious, pharmacological pain relief options in labour are being judged for it. Acupuncture is ok because it sounds ancient and mystical and (if it does anything) it'll only help with the pain not remove it entirely. But drugs are modern and man made and perhaps women should still suffer to bring forth life?

In a fantasy world where NHS maternity services had infinite supplies of money and staff I'd be fine with it offering acupuncture for all, chuck in some massage therapy for those who don't like needles, doula's for anyone wanting non medical encouragement etc. etc. But that isn't the NHS we have or, probably, ever will. So I'm really uncomfortable with the idea that we should be spending more time and money promoting techniques that may be little more than placebo, especially if doing so could mean ignoring the need to improve access to proven forms of pain relief and better midwife care.

Time, care and choice - I wish those were available to all on the NHS

SBx

Wednesday, 16 September 2015

Why It's Not Science V Nature


Getting back to nature seems to be increasingly important to many people. Wander about health advice on the internet or in print and you'll soon find stories about how eating, living and parenting like our wilder ancestors will make us happier and healthier. That we can, if we learn from them, get back to a time when our lives were simpler and free from the fatigues and stresses of the world we now inhabit. Take a detour to the more judgey end of parenting advice and you'll be told that failing to be natural, to breast feed, baby wear, co-sleep etc, will lead to irreparable physical and psychological harm. These are powerful promises and they breed powerful desires. When faced with a medical system that often can't explain, never mind cure, our maladies, alternative remedies and restrictive diets offer the tantalising promise of control. Of actually being able to do something for ourselves.




Although there is little, if any, good scientific evidence for many of these claims they do feel desperately appealing and intuitively correct. The lack of cold, hard, modern science, if anything, seems like further proof that these alternatives are better, kinder and more holistic. I keep seeing articles and comments which assume that science (and often modern medicine too) is divorced from nature. That we scientists have set ourselves apart by obsessing over percentages, chemical formulas and our own powers and in so doing we've become blind to the simple truths offered by nature.




Science stands alone and aloof at one side of the room. Nature, art, beauty and creativity are at the other.

But that's not how I see it. It was a love of nature that drew me to science in the first place. As a child I devoured BBC natural history programs that brought biology into my home through innovative technologies and presented it like works of art. I was fascinated by dinosaurs, owls and strange, exotic animals. I learned how these creatures interacted, how ecosystems depended on impossibly intricate webs of connection, containing everything from tiny insects to giant predators. I dreamed of going on pilgrimage to the Amazon rain forest or Galapagos Islands so I could see these wonders first hand. As I got older I also found that sense of wonder in the human body. It seemed (it still does) that every time I learned something new it only revealed another layer of complexity, another set of questions that I had no idea existed. Once you understand the organs of the body - what about the cells that make them up? Then there are the different components of those cells - what do they do? How are they powered? What are the individual molecules involved? The atoms?




I am a scientist, not because I deplore nature, but because I am in awe of it. Learning something new about how our bodies work is, to me, like experiencing a great work of art. It can be emotional and beautiful, it can teach us truths about life and humanity, while also challenging us with new questions. Physicists may search for the Theory Of Everything but in biology it's the very fact that we are no where near understanding even a fraction of everything, that makes it so fascinating.

This doesn't, however, mean that I see or seek perfection in nature. Working in medical research it's easy to find examples of what can go wrong. The complex DNA blueprints in our cells are copied and repaired perfectly, billions of times in our life, but it takes just a handful of little errors, a few misspellings, to set off a fatal disease process. Sometimes those errors are the result of our modern way of life, tobacco smoke for one, is undoubtedly dangerous. But more often these little mistakes are utterly random. Nothing, not even nature could create something as complex as a human being and make it flawless. To get back to this blog's pet topic for a moment, that's why I hate it when people say we humans are "perfectly designed for childbirth". We aren't perfectly designed or even perfectly evolved for anything. We are a fantastical compromise, a phenomenally intelligent mammal which can run for hours on just two legs, yet still get our babies' enormous heads through the twists and turns of our altered pelvises. Evolution, nature, does not require that compromise to work for everyone, it doesn't produce perfect finished products. The benefits to our species of being clever and keeping our hands free for tools are so great that nature is happy to sacrifice the mothers and babies whose unusual pelvis/ big brain combination just doesn't work. Nature is ok with a bit of collateral damage.

Of course I don't speak for all scientists, or even all biologists. There are scientists who show little empathy for other people or the natural world, who cheat and fake results to get to the top, who act unethically or just aren't very nice human beings but that is true in any large enough group of people. It is, sadly, human nature. But speaking for myself, nature is not this scientist's enemy. It is flawed and complex and much of it is beyond my comprehension but this is why I am a scientist. Because I never want to stop asking why? how? and what went wrong?



Like most people I would love to get rid of the lingering fatigue of modern life. I am tired and sometimes things hurt. I wish I were slimmer, happier, more energetic, less stressed and a dozen other things. I wish I could achieve all that by tapping into ancient wisdom, by eating like our caveman ancestors or breastfeeding my toddler. But as a scientist I reluctantly concede that it just isn't that simple, nature isn't that simple. So I will continue on, dressed in my health and safety protection gear, surrounded, unnaturally, by millions of pounds worth of droning and buzzing high tech equipment and maybe I will contribute just a tiny bit to our understanding of nature. There are no simple cures, there was no golden era before science, when humans bursting with vitality lived joyfully at one with nature. But Science is not nature's opposite or opponent. Science glorifies nature and in so doing, in slow tentative steps, we might come to understand what ails us and perhaps how to fix it.

Most scientists are just ordinary people. We juggle work and family, try to follow our passions and leave the world a little better than we found it. Sometimes we wish life were simpler or we felt healthier and sometimes we just wish that we could get away. That we could stand alone on a beach, with the sun on our skin and stare out at the mysterious depths of an ocean. Or sit in a forest surrounded by the sounds of birds and trees. Just like our ancient, natural, ancestors did.



SBx
PS I did go to the Amazon and the Galapagos Islands. They were even more amazing than I'd imagined.

Wednesday, 9 September 2015

Have Your Say In The NHS Maternity Review

A big review of NHS maternity services is currently underway and those involved are actively seeking out the opinions and experiences of Mums and Dads. This week they launched an online consultation which you can access here:

If you or your partner/friend/family member has had a baby with the NHS please please take a few minutes to fill this in.
I am eternally grateful to the NHS, in another time or place MissE and I wouldn't have made it or if we did, the cost would have been crippling. But my first experience of bringing a child into the world was, to be honest, pretty hellish. I hope one day my little girls will become mothers and that when they do the NHS will be there to help them, but services need to improve, as a minimum women must feel safe and respected, currently that isn't always the case. Money is tight but improvements can be made, I had a pretty positive experience with my second pregnancy and much of that was thanks to actions and attitudes that cost nothing.

But you don't need to be passionately interested, or actively involved in maternity services to take part in this review. It doesn't matter if your own experience was great or terrible or just a bit meh. If this review is to do anything then it needs to understand the full spectrum of NHS maternity experiences and actually I suspect it's those who fall somewhere in the middle, who's care was ok or quite good but not amazing or terrible, who are least likely to speak out. Yet those experiences are valuable and important too.

 It's vital that the review hears as many different voices as possible. They are of course talking to doctors, midwives, charities and campaign groups as well, so there are a lot of strong voices joining this discussion. But as I wrote at the start of the review, it needs to hear the quiet voices too because the loud ones may not speak for everyone.



SBx
PS. I'll be filling it in twice as my two experiences were so different!




Tuesday, 18 August 2015

C Section Rates - The Economist Edition

So I was going to take a break from blogging this month. It's the school holidays and I've been trying to juggle childcare, work and my new sideline reviewing festivals (check out the fab Festival Kidz website btw). Frankly, I'm exhausted.

But, MrSB sent me an article in the Economist and now I'm sneaking back in here for a bit of a rant. Actually, it didn't make me all that cross, it was more a despairing sigh than anything. I'll fess up to not being a regular reader of The Economist. Frankly, if I had any interest in economics I wouldn't be working part time in a lab. So I had always assumed it was a pretty serious publication and would likely deal with numbers and data in an intelligent and non sensationalist way.

oops, my bad!

Essentially it is (yet another) story about how there are far too many C sections going on and it could have been cut and pasted from any of the many similar pieces. In fact, let's play a little game shall we?




HOUSE!!  This article has the lot.

There is nothing new or insightful here in fact I'm a bit puzzled as to how it is news at all as it seems to be based on a Lancet article and subsequent WHO statement that I (among others) wrote about back in April.

The only novel thing is an interactive infographic which plots C section rate against maternal mortality. From which the writer concludes that where the Cesarean rate is above 10-15% (so basically the entire developed world) the extra c-sections don't save any mother's lives so must have been unnecessary.

But, fancy and interactive though that graph is, it tells us nothing about the optimal C-section rate. Firstly it says nothing about infant mortality, which is y'know kind of important (the Lancet piece shows a similar effect to maternal mortality but that's barely mentioned here). But it also gives no information about other bad outcomes. Death isn't the only thing that is worse than a C section. Certainly cesareans have serious down sides, but I'm guessing that women who've suffered for years with obstetric fistulas, or who have dedicated their lives to caring for a brain injured child, would probably think that one off surgery was the lesser evil. So without the data on these outcomes we can't say that 10%, 15% or any other figure is optimal (blimey, how many times have I said that on here?!)

The piece also tries to prove the pointlessness of all these C-sections by comparing the rates in economically similar countries - if there weren't loads of unnecessary C-sections going on how come there are twice as many in Mexico as in Costa-Rica? Or in Italy compared to the Netherlands?

But for me, that just hints at the point that has been so widely missed in this piece and so many like it. Certainly there are women who are coerced into C sections they didn't want and probably didn't need but what if in addition- just maybe, some women are making rational, reasoned decisions about their own bodies? You know, like proper grown up human beings? What if the differences between Italy and the Netherlands aren't entirely due to women doing what they are told by doctors but because there are considerable cultural differences between these countries and that may apply to women's attitudes to birth as well?

I'm speculating here of course but is it so utterly inconceivable that women should think a bit sometimes that it doesn't occur to the Economist to mention the possibility? Well except to trot out the same old tales of wealthy women choosing C sections to fit conveniently in their schedules or just to avoid traffic jams (seriously they say this)!

Like so so many articles it starts with the assumption that "as nature intended" is the best thing for all women's bodies. But in a world where we can eliminate diseases that once killed millions, where a woman might just be the next president of the most powerful country on earth and where a magazine can add an interactive infographic to the greatest and most accessible pool of human knowledge ever imagined, why is it so inconceivable that nature might not always know best on this one little thing and that choosing to do the unnatural might actually be ok for some of us?

Rant over, I need sleep, I'm taking MissE to Hamley's tomorrow (yay!!)
SBx


Tuesday, 21 July 2015

What I Want The National Maternity Review To Know


There is a lot I would like to say to you but it all boils down to this: Please listen.

Listen to as many voices as you possibly can. Even, no, especially the difficult ones. There must be no voices too hard to hear and no beliefs too sacred to be challenged.

Listen to the loud voices, the ones who come to you with years of campaigning behind them. But also seek out the quiet ones. The mums who don't write blogs or set up support groups, who's experience of maternity care was great or simply adequate. Find those who are silently trying to put a bad experience behind them or grieve for a baby who never came home. Those voices can be hard to find and harder to hear but if the review is to achieve it's true potential, they must be sought out.

Hear all these voices, the loud and the quiet, the angry and the joyful, with an open mind. I know that's hard. You all come to this review with your own knowledge and beliefs, born of personal and professional experience. How could you not? But try to set it all aside just for a little while and put yourself in the speakers shoes. Even if what they say runs contrary to all your own beliefs and experiences, they deserve to be heard, some might even have a point.

Listen also to the voiceless statistics, the dry scientific evidence from studies that can't hold anyone's attention the way a personal story can. They may still have something very important to say. Don't avoid them if they upturn a belief you hold dear, challenge them rigorously, but be prepared to change your mind if you have to. If the statistics and studies agree with you, then challenge them even harder.

Try for a while to quieten history. We know that historically human reproduction was filled with dangers. But we've come a very long way (at least in the developed world). Now the majority or us can assume we'll take home a healthy baby and be alive and well to care for it. But it's not just distant history that haunts us, the shadow of domineering male obstetricians who expected women to shut up and do what they were told, still looms. Though most doctors and women hold very different attitudes now. Then there are the choices which are now very safe but still viewed with the fear of the past. Pain relief, for example, has never been safer or more effective. Yet it is often looked on with concern or even a lingering biblical disdain that somehow women are meant to suffer in childbirth. If we're going to move on and create a maternity service that is both safe and compassionate, that offers both choice and protection from harm, then we need to shine a light on the here and now, not what used to be. We have never had so many good, safe, options but women must be made aware of them and when they make choices they must be respected, not caricatured as happens so often in our media.

Finally, listen to this - Thank you. I'm just an ordinary mum, nothing special but for what it's worth I am grateful to all of you for taking part in this review. I've experience both wonderful and dreadful maternity care on the NHS, I will be forever indebted to the people who brought my babies safely into the world but I know things are far from perfect and the challenges will only become more complex. Thank you for standing up and tackling that, I hope when the review is done your voices will be heard too and acted on by those with the power to bring about change.

SBx

For readers who don't know, The National Maternity Review was setup following the Kirkup enquiry into deaths at the Morecombe bay maternity service, I wrote about the Kirkup report here. I know of at least two other bloggers involved with the #MatExp group who have already written to the national maternity review do go and read this by Leigh Kendall and this by Helen Calvert.

Friday, 17 July 2015

Finally, MissE's Birth Story


I've always been in two minds about writing down the details of MissE's birth. In some ways it seems odd to share such an intimate and difficult story with whichever total strangers come across my blog. It is necessarily very long and I'm wary of producing a horror story or looking like I'm just fishing for sympathy. But her birth is also a huge part of why I write this blog and especially why I get so infuriated at stories that claim C section mums are weak or selfish. So, when I heard about a birth stories linky, I decided to have one more go at writing this down. Perhaps having a deadline is what finally got me through it. It's not a very happy story, (though there are far worse) and it is very long so I don't know if anyone will endure the whole thing. But if nothing else, putting it all down here has been cathartic and provides a record of events and perhaps an insight into why I write this blog.
SBx

A few days before MissE was born



Tuesday 2.33am

This isn't the story I hoped I'd write, although if you roll the credits at just the right moment, they both end up sort of the same. There are all the expected superlatives for that moment when you see your baby for the first time. She was beautiful, amazing, perfect and I was instantly hit by love so strong that it crushed me and lifted me to the sky in the same moment. But in The Other Story, the one I planned before her birth, I would have been holding her in my arms, in the midwife unit, perhaps in a warm pool of water. In this story, the real one, my arms were trapped, I lay on an operating table and the tale of how I got there was a lot longer and more complicated than I had imagined.

Sunday- Home

Both stories do start out about the same though. I know, almost exactly when the contractions started. It was 5pm. A Lot of people are unsure if it's the real thing, but I'd been having vague, uncomfortable tightenings for weeks and this was different, more focused and deliberate. I wasn't afraid, if anything I was excited and relieved. At nine days overdue in the August heat I was obsessed with when this baby would finally arrive. The previous Wednesday I'd gone to the midwife and reluctantly discussed the induction that my NCT teacher had promised would lead to a cascade of medical interventions and the one thing I was actually afraid of - a C section. It would also bar me from the midwife led unit and I was feeling pretty miserable about it all. Then everything changed to delight when I was found to be three centimeters dilated already and told to go home and prepare for labour. But labour didn't start on Wednesday night, or Thursday and by the weekend I was again resigning myself to the dreaded induction. So I welcomed those first contractions gratefully even as they got more and more painful.

I was also bleeding a little so I called the hospital who suggested I come in just to be checked. I knew I would probably be sent home again but it was only ten minutes away so we went along and after a short wait and a quick exam I was told all was fine and I could go home to get some food and rest. Disappointingly, I was still only three cm dilated but I felt good and couldn't wait to meet my baby.

Back home we ate pizza and (as recommended by that NCT teacher) I had a large glass of wine. The sleep though was more of a problem. While MrSB slept soundly next to me I was jolted back to consciousness by a contraction every time I was about to drift off. After a while I gave up and, with help from poor woken up MrSB, got into the bath. He went back to bed and I lay in the warm water, listening to whatever was on Radio 4 and keeping track of my contractions on a little clock by my feet. Getting in the bath seemed to speed things up almost immediately, the contractions were soon five minutes apart and quite strong. But the warm water in our extra deep bath made it bearable  and calm and after an hour I woke MrSB up again to say it was time to go back to hospital.

Monday Morning- The Midwife Led Birthing Center

It was odd driving though central London very early on a Monday morning, knowing that all around us millions of people were getting up, doing ordinary morning things and reluctantly preparing for another day at work, while we were about to have our whole lives changed. We had a longer wait in reception this time, I couldn't sit on the plastic chairs and it just seemed too bright and exposed. I paced up and down, worrying that the midwife unit was full and I would be sent to the labour ward or across London to another hospital. But a head finally appeared around the door and I was taken to one of the birthing rooms.

It turned out I had arrived, inconveniently, during a shift change. Initially I was assigned to the head midwife and her new student. I was fine with the student examining me and delighted when she turned to her supervisor smiling and said "ooh I don't want to say it!" I guessed what she was thinking, I was nearly there! All those hours, all those contractions, I was doing this, I could definitely do this!

But this is where The Other Story falls away.

The supervisor checked herself and shook her head. Three centimeters. Still only three.

In spite of that, they decided I could stay if I wanted as the contractions were clearly strong and frequent. I asked if I could use one of the birthing pools and was relieved to be told one was free but my senior midwife had gone elsewhere and the new one was dashing between me and another women who needed her more so I wasn't allowed to use the pool unassisted.

I tried to cope by keeping active, bouncing on a ball and firing up the booster on the TENS machine but I desperately wanted to be back in the water. The room had a little bathroom with a tiny half bath and in desperation I wedged all six foot and nine months pregnant of me into it. When the midwife found me, much later, she took pity and agreed to me using the birthing pool with just my husband for a lifeguard.

The pool however, was a bit of a disappointment. Perhaps I was just too tall for it but I found it hard to get comfy. It was better than being on land though and I breathed through each contraction, eyes closed, just letting them crash over me. I even managed to eat a vegetarian moussaka that arrived at what I think was lunch time, although in the dark windowless room I had lost all track of time. At some point the midwife came in and was able to stay with me. She sat quietly in the corner making notes while I bobbed about, amused by the surreal oddness of the situation.

Eventually, reluctantly, and with quite a bit of help, I hauled myself out of the tank, feeling the unwelcome return of the heft of gravity. We went back to the birthing room and I knew this time, I was nearly there,  nine cm at least? Surely? No, still three. Five days since the first examination, more then twenty hours of unremitting contractions and I had gone nowhere.

My birth plan said I didn't want anything to speed up labour. But my birth plan was written by someone else. Someone who hadn't been awake for almost 36 hours. Someone who wasn't, even after all that, still excited to meet her baby and sure it would happen soon.

So I lay on my back as the midwife inserted a hook and broke my waters. I hadn't minded all the other examinations but this time her head was right there between my legs as the amniotic fluid gushed out and I felt like I had wet myself right in her face. The indignity wasn't the worst thing though. The increase in pain was instant and huge. I was encouraged to walk now. I desperately wanted to be back in the comforting water, to rest in the warm, dark room. But I knew I needed to try something new so moved painfully down the corridor, stopping to hang from the wall or my husband's shoulders (oh thank heavens for those shoulders) with each contraction. In the little plastic garden at the end of the corridor some staff were eating their lunch, but quickly left as I bent over the window ledge for another contraction and the horrid gush of fluid that came with it. Outside people were sitting in the park, having normal days. How was that possible?

For two hours it got more and more intense. I'd been told that the pain went away completely in between contractions but it didn't. It was always there, along with the fog of exhaustion. The contractions obliterated everything, any thought I had was smashed from my head every few minutes, over and over and over again. I wasn't me anymore, the rational, sensible one, an educated women who rarely asks for help or gets emotional about things. I was an animal who knew only the sensation of pain and the desire to survive.

When I was examined again, I had only got to 5cm and I was defeated.

The obstetric unit was just down the corridor from the midwife unit, but it was the longest and hardest walk of my life. MrSB was ahead of me talking to the midwife and I lagged behind, stalled continually by the contractions. The midwife, shift number two or three at this point, had said that the next step was a  syntocinon drip to speed things up and that meant I had failed. I knew I couldn't keep going any longer and that to do so would be pointless anyway but I would have to leave the midwife unit, give up on my plans altogether and submit to all those scary things my NCT teacher had threatened. Having heard horror stories about syntocinon, I asked if I could have an epidural first. To my surprise the midwife seemed to be relieved when I said this and suggested I try some gas and air too so I could keep still for the epidural to be administered. Really, I'd wanted something for the pain for a long time, but in my confused state I hadn't wanted to ask for the gas and air, feeling I should wait for it to be offered.

Monday Night - The Obstetric Unit

The room was surprisingly similar to the one in the midwife unit but larger. I was given the gas and air fairly quickly and oh my god it was wonderful. I felt drunk. I was uneasy with the knowledge that I wasn't thinking straight, while everyone else was stone cold sober, but at least the pain was dampened enough that I could think at all. There was no anaesthetist available but with the new pain relief I was able to cope for another hour or so. When she was eventually free there were no drugs made up and so I waited some more while the ingredients were chased up with the pharmacy and carefully mixed.

Then they had to get the epidural in. This was where the really horrible experiences began. I was asked to sit sideways on the bed and bend forwards so the anaesthetist could put the epidural in my spine. But I couldn't bend, my belly was huge and I simply couldn't arch myelf into it. The doctor put the needle in, but missed the required spot. She had promised not to insert it during a contraction but instead she used that time to feel my bones and muscles, squeezing my back in a way that was absolute agony. I swore at her and she snapped back that she wasn't putting the needle in, after that I didn't dare complain again, there seemed no point anway.  I cant remember how many more failed attempts there were but eventually she got it in and I was hooked up to the epidural along with a cannula in my hand for the syntocinon (much later I learned from my notes that my spine is slightly twisted which is way it was so difficult to get the epidural in ).

Mostly I was just thankful that the process was over but as my right side began to go numb I felt a wonderful sense of release. It didn't actually bother me that my left side could still feel everything, I felt guilty about having the epidural at all and half the pain was still a lot better than all of it, so I didn't say anything. In a weird way I wanted some of the pain to remain, to prove I hadn't given in entirely. But after a while a midwife covering a break realised what was going on and moved me about until the drugs swept down my left side too.

It was bizarre, having been in so much pain, to suddenly feel tired but ok. I could tell from the monitor that the contractions were getting bigger and bigger but I couldn't feel them. At some point MrSB popped out and bought sandwiches and magazines, then I think he may have fallen asleep in a chair. I was too tired to read and too hyped up to sleep but I flicked through the pictures for a while. I was also able to walk to the bathroom initially, gingerly towing my drips and tubes, but after a few hours, and a humiliating attempt to use a cardboard bedpan, I was catheterised.

Finally, at around 11pm I was examined again. By now I was being looked after by two lovely midwives. One seemed confident and experienced the other was a trainee on her last shift. She was herself a mother of three and if she "caught" my baby, her training was complete. If we failed, she faced extra shifts. Also in the room was a doctor or maybe several. I'm not actually sure now how many people examined me, I was well passed caring anyway but to my absolute delight I was finally found to be fully dilated. I was told we would continue with the drip and wait another hour to try to get the baby to move down more and then I would push. We also agreed to stop topping up the epidural so that I would be able to feel what was going on and move around. Exhausted though I was, this was wonderful news. I could, after all, sort of, do this birth thing properly. But as the doctor left the room I heard him say quietly to the midwives: "don't let her push for too long, no more than an hour. She's on my list".

Tuesday - The Obstetric Unit

The hour ended at midnight. Now I knew my babies birthday, it would be today, this specific Tuesday. Without the epidural the pain was returning and I was finding it hard to think again but when the midwives returned a little later we set about bringing my baby into the world. At first they had to move me around. Hauling my swollen body and dead thighs into position after position and encouraging me to push with each contraction, but gradually movement returned and with it the pain. We tried more positions and a birthing stool but that just made me more aware of the discomfort from the catheter. I asked to have it removed but was told it had to stay. Back on the bed I was laid flat on my back with my lags in stirups, it was the complete opposite of what those NCT classes had said, but I'd done all the squatting, kneeling and bending already and that hadn't worked. I was also aware that, although the pain was back, I couldn't feel the baby, she still seemed high in my belly, and I had no urge to push, I just did it, to order on each contraction. At one point a midwife was next to me urging "come on, just one more push!" but it seemed impossible that that was true and the midwife confessed that it wasn't when I asked her. In a rare moment of assertiveness I told her not to say it again. It felt patronising and insulting, something you'd say to a reluctant child riding their bike up a hill, not to a grown woman who knew it was a lie.

Still I pushed and the doctors one hour deadline came and went. Perhaps the midwives really thought I could do it and wanted to spare me the alternative, perhaps they just wanted to be spared those extra shifts, either way it wasn't to be. I don't really remember when or why we decided to stop but at some we did. I think it must have been a midwife who made the final decision as I'd given up long before, but was too dazed to do anything other than carry on doing as I was told.

Then there were more people in the room, the doctor was back and other doctors too. They told me what I dreaded but, really, already knew. I needed a c section, the one thing I had been afraid of before all this began. A consent form appeared, and someone began reading me a list of risks: n% chance of a hysterectomy x% chance of a blood transfusion, y% chance of death. It seemed utterly insane to imagine I could make a reasoned decision, based on statistics at that point, were these people mad? Had they any idea how exhausted and confused I was? Was there really any other option at this point anyway? I asked my husband to tell me what to do and he told me to sign the form.

Tuesday - Operating Theater

A more urgent case needed the theater first so again I waited. The epidural was started again and I was given gas and air while I waited for it to work. But this time it did nothing. I screamed at the midwives that the pipe must be blocked but it wasn't. I was in what should have been the final throws of labour with (as I found out later) a huge, back to back baby. My contractions were made still stronger by syntocinon but all that I could bear, when I thought it would bring me my baby. Now I despised that pain. It was just so ****ing pointless, all that agony coming again and again and still I would be cut open and my baby removed by someone else. All that pain and still I couldn't do what millions of women throughout history have done and get her out myself. I can't begin to describe that pain, there are no words bad enough.  When the epidural did eventually return it only worked on one side again.

I don't remember going to theater. I have an image of lying there with machinery next to my head and a blue screen across my chest. The aneasthetist, a different one, was saying something about general anaesthetics and I was terrified that he was about to put me under, that I would miss the birth entirely and finally surrender the last shreds of my consciousness. But he was just asking questions just in case.

I was expecting them to get on with the surgery, at least then it would be over, but instead the surgeon decided to try the suction cap (ventouse). I couldn't see what was going on, I pushed to order again but I had so little energy left and no confidence it would work. Much later my husband told me how the surgeon had been using all his strength and weight to try and drag my baby out, bracing a foot against the leg of the operating table to add to the force. I'm glad I couldn't see that being done to my baby and I'm glad that I couldn't see what came next, when he reached in and tried to turn her head and twist her into a better position. But the ventouse had only managed to move her down far enough for her head to become firmly wedged in my pelvis, unturnable and unable to come down any further. Someone suggested forceps but the surgeon decided against that and now, with her head partially descended and trapped, the C section needed to be done quickly.

After that I have only snatches of memory.

I remember shaking violently and not knowing why, it was terrifying. In my confused state I thought I was hemorrhaging and going into shock.

I remember realising that I could see everything that was going on behind the screen in the reflection in a glass panel door panel. It was gruesomely fascinating but in the end I turned away.

I remember feeling sorrow guilt that my child would never have a sibling, I could never do this again.

I remember my husband looking over the screen as the baby was lifted from me and him telling me we had a daughter.

I remember silence, and the moments that seemed to last eternity as I willed her to cry and feared the very worst.

I remember having to choose if my husband should stay with me or go to our baby and sobbing as I was left alone so she would have one of us with her in these precious moments.

I remember hearing the surgeons talking anxiously about a bleed that wouldn't stop and feeling so afraid and exhausted and wretched that I didn't even care if it killed me.

I remember feeling like a slab of meat on a butchers block. 

There were strangers with my baby but I couldn't see her and no one was telling me if she was ok. There were strangers at my belly and they were cutting and sewing my body but they didn't think to speak to me. I was not empowered or elated by birth as I'd been promised by all those antenatal classes, hypnobirthing CDs etc. etc. I was merely flawed and inconvenient flesh.

Then, I remember a cry. A full blown, big lunged new born cry and a little while later, I saw my baby girl and felt that smack of love and all those superlatives of how wonderful she was. It seemed odd to see her for the first time, not naked, but wrapped in a towel, already in a nappy. I couldn't quite believe that something so astonishingly beautiful could have come from my wretched body and deliriously wondered if there had been a swap behind that blue screen, though I knew that made no sense. I was desperate to hold her but my arms were trapped under the blue screen and I could only look and yearn to touch her, as my husband held her near.

In recovery, with my baby in my arms at last


******
Friday July 17th 2015 - Home.

As I write this, our house is slowly filling up with Disney princess party accessories. In a few days we will celebrate my wonderful little girl's sixth birthday. I wish, when she asks me about her birth, that I could tell her The Other Story and that that first birthday was the happiest day of my life. But in reality, this is the story we have and those three days were the worst I've ever lived. So for now I'll skip the details and just tell her how loved and wanted she is.

This story will never be magical or inspiring but (I hope) it's not a horror story either. There were aspects of my care that weren't great and sadly, what followed on the postnatal ward was no better. But I know many people have it far worse and my overwhelming feeling looking back, is gratitude. In another time or place MissE would not be here, nor would I. Her little sister would never have even been conceived (her birth story is very different, you can read it here).

So difficult though the real story is, and so different from what I'd hoped for, it is what it is and there is no changing that now. MissE was worth every contraction, and every indignity and I would suffer them all a hundred times over for her if I had to. That's not heroic, it's being a Mum. In the end the stories end the same way and it's a very, very happy ending.


Me, MissE and her little sister MissM, camping in the woods